Hypermobility Therapy for Ehlers-Danlos Syndrome

In medical school, there's a saying that students often hear: 'When you hear hooves, think horses, not zebras.' This emphasizes that the most common explanations are usually correct; however, there are exceptions. This is how patients with more complex and atypical conditions, such as Ehlers-Danlos Syndrome (EDS), have come to refer to themselves as 'Zebras.' The Ehlers-Danlos Society has incorporated zebra stripes into their logo to symbolize this nuance of the syndromes. While many individuals who identify as Zebras have an official EDS diagnosis, particularly hypermobile EDS (hEDS), not all who exhibit hypermobility will receive this diagnosis. Nevertheless, this fact does not alter my approach to hypermobility physical therapy or Zebra Therapy.

Due to the nature of hypermobility, individuals with Ehlers-Danlos Syndrome (EDS), often referred to as 'Zebras,' experience joints that are inherently less stable and have tendons and ligaments that are more lax compared to those without a connective tissue disorder. It's essential to incorporate hypermobility physical therapy that focuses on strengthening exercises to enhance joint stability, reduce subluxation, and promote strength within the existing range of motion as part of managing hypermobility. A thorough understanding of hypermobile spectrum disorders (HSD) is crucial, as pushing a Zebra too far in their physical training can lead to negative outcomes; hypermobile bodies respond differently to traditional exercise compared to those without hypermobility. Furthermore, since connective tissue is present throughout the body, it's vital for a Zebra's healthcare provider to recognize and address other potential symptoms of EDS.

Ehlers-Danlos Syndrome (EDS) and hypermobility conditions like HSD rarely exist in isolation; they often present as The Triad alongside POTS and MCAS. As someone living with these conditions, I understand the complexities involved in providing appropriate care. My approach to hypermobility physical therapy differs from traditional methods, as I consider the entire person rather than just focusing on the joint that’s causing pain. Our sessions will encompass essential aspects such as strength, range of motion, and pain management, as well as setting you up with a Home Exercise Program. Additionally, we will explore body positions at work or school, tailor exercises to align with your hobbies and interests, and address nutrition, sleep hygiene, emotional well-being, and stressors—all of which significantly impact your physical health. I collaborate with various specialists in the Denver Metro Area who also understand EDS and related conditions, and I can assist you in finding additional providers to complete your healthcare team if you're experiencing gaps. This holistic approach is a part of what I refer to as Zebra Therapy, aiming to provide comprehensive support for your unique health needs.

I provide specialized treatment for conditions such as Ehlers-Danlos Syndrome using innovative approaches like hypermobility physical therapy. I do not have contracts with any insurance companies, including Medicaid/Medicare, and operate on a cash pay basis only. Since traditional allopathic medicine often falls short in effectively treating these conditions, health insurance typically does not cover the kind of work I do, including Zebra Therapy. However, I am happy to provide you with a Superbill if you wish to submit for independent reimbursement.

If you find value in the services I offer but are facing financial constraints, please inquire about a sliding scale payment option. Accepted payment methods include cash, check, or debit card, with Venmo and PayPal available with a transaction fee.

Initial Hypermobile Evaluation: $300

90 minutes - 2 hours for a full evaluation of conditions, symptoms, movement patterns, current management, lifestyle, and more, particularly focusing on issues related to Ehlers-Danlos Syndrome. You will leave with a comprehensive plan of care that includes both short-term and long-term goals, a Home Exercise Program tailored for hypermobility physical therapy, and scheduled follow-up visits.

60-minute Follow Up: $150

After the initial evaluation, these sessions may include updates to your current treatment plan, adjustments to your exercise routine, coping mechanisms, symptom management practices, troubleshooting triggers, and lifestyle techniques specific to managing Ehlers-Danlos Syndrome. My aim is to cater to your individual needs rather than adhering to a predetermined checklist.

45-minute Education Session: $120

In addition to traditional physical therapy, I also provide medical coaching, helping you understand how to effectively communicate with new providers, advocate for yourself regarding specific treatments, and educate friends and family on the complexities of conditions associated with hypermobility. I can assist with paperwork, such as school forms and requests for workplace accommodations (while I cannot sign these, I can create the appropriate wording), and help document levels of function relevant to your Zebra Therapy journey.

Any additional work outside of these specific sessions will be charged at a rate of $150/hour in 15-minute intervals.

If you would like to cross-reference with the Ehlers-Danlos Society Healthcare Professionals Directory regarding Ehlers-Danlos Syndrome, you can find my official affiliation that includes a focus on hypermobility physical therapy and Zebra Therapy here: https://www.ehlers-danlos.com/directory/sara-townsend/